Category Archives: Human Interest

GRASS-roots Efforts to Find Relief

 

Where Do I Go From Here?

My controversial choice to seek alternatives taught me just how judgmental people can be, as many walk away.

By JD

Author, Reporter-Journalist

This year there were also several changes I made in my life.  I have decided to use more natural and alternative means in helping deal with the pain that MS, Arnold Chiari Malformation and Fibromyalgia bring into my daily life.

It was a hard decision to make, but I spoke with those who mattered in my life about it, well at least those whose non judgmental opinions matter.  I have decided to be a criminal and partake of herbal substance the state of Missouri now considers illegal.  See I knew marijuana, although banned, does alleviate many of the complications and pain related to MS, and other muscle and pain disorders, so I partake and just hope not to wind up in jail should I get busted purchasing it. Missouri is not like Michigan or California, which allows it.  Were too full of over judgmental Vicodin® popping bureaucrats who think it is a gateway drug to heroin and methamphetamine’s.  I sure know several Vicodin addicts who have moved on to Crystal meth or heroin, and almost ten times as many medicinal marijuana users who would not dare to touch other drugs.

I was tired of repeatedly taking Ibuprophen® for pain, and did not alleviate it.  Instead it landed me at the gastro-enterologist for treatment of permanent stomach and gastric damages to the lining of my stomach.  These damages required 2 medications all the time to alleviate, and another medication to counter their side effects.  This becoming victim of the pill cycle again.  So instead of taking pain relievers causing damages, I partook of the “herbs”.   I also healed the stomach acid and gastric issues with good old fashioned apple cider vinegar, another natural solution.

I started feeling a lot better, so much so that I actually was able to ride in one of the Bike MS rides, for 150 miles.  Of course I struggled and it hurt afterwards, but I did something I wouldn’t have been able to if I had taken the pharmaceuticals recommended by physicians.  I guess nature had it right, and man of course failed in playing God.  I took my granddaughter to the zoo, played Frisbee golf, and kept up with my friends better than I have in years, whenever we did activities.  I was starting to live!

Just when I thought there was hope and saw that the state was considering Medicinal Marijuana on the ballot, it was once again voted down by people who are so blinded by the profits and campaign donations they get from pharmaceutical companies, they didn’t want to listen to the cold hard facts of scientific research and how it has improved the lives of many people in other states. Once again they were fearful it would be a drug leading to other addictions.  HMM, I thought that’s what Percocet, Vicodin, and Alcohol did?

 

I was now left with the decision to either break the law or spiral downhill once again.  Why I could take other pain killers, and then medications to counter them as I did several years back, and have no pain, but no life, or I could become a criminal and go across a few state lines to Colorado and purchase what remedy would work, and sneak back home to Missouri.  In the meantime,  I fight for legislation to regain my life, and when I feel I cannot handle the pain and side effects MS brings, I become a criminal until I find relief I need.  I still cannot understand why Narcotics which cause more harm are legally and readily available, and something so natural is a crime.  Why we don’t hear of all the deaths so often caused by legal prescriptions?

So now, I as many others living in pain, fight legislation for relief, from behind our computers, and with help from friends, because thanks to the government forcing unjust regulations, we cannot do as much as we like, because we cannot partake of what alleviates our misery as often as we like.

I spend my days reaching out to others that have medical conditions preventing them from living their lives to the fullest, and when life gets to tough, I commit a misdemeanor or two in the name of liberty and freedom, because I do believe the Constitution allows me to do to my body as I so choose and I acknowledge no other authority that does not adhere to the Constitution.  I have found journalism to be my source of venting and relaxation, as some days it is about all I can do, without discomfort.

Just as our lives belong to us and how we live determines the outcome, so is our health.  How we choose to fight our health battles determines the outcome.  I shall fight for the best alternative care that works for me, and hope that one day, my voice will be heard.

The hardest part is staying silent.  I suppose if half of my family read my book, or stayed at my house long enough to notice my routine, they may find they’re in the presence of a criminal and report me themselves.  Should we not have a choice?

How many of us know people we are close to, that get behind the wheel of a car after consuming a drink or two?  They may not be over what the state law constitutes as legally intoxicated, but we know they are impaired enough to act quite idiotic and not rational?  So I will take my retribution, live with my conscience, and continue what works for me.

 

  There is a journey we all take in life, this is mine.  Let me take it my way and be happy that I am alive to continue it.

©Copyright protected 2015: NWU Local 1981

©IAPP Author/Journalist   Press ID # 1007490467

 

Quality VS. Quantity

Quality vs Quantity

Exert from my Book,

“Walk With Me My MS Journey” © 2010

By JD

Author, Reporter-Journalist

 

      When dealing with health issues that are of a long term nature or are considered irreversible or non curable, we become familiar with the meaning of quality of life verses the quantity of time in our life spans.  What we as individuals place priority on does not usually match what is of importance to most in the medical profession.  I discovered this to be very much a reality when I was first diagnosed with MS.  It seemed as if I were in their eyes another scientific experiment that they could base longevity ratios and statistics on if they could just convince me to follow their “remedies” for living with my diagnosis.

         They first want to tell you there are medications that will help make life easier and possibly slow the progression of disease. Before you consider taking any pharmaceutical to extend your odds, add a few more years to your life, take time to educate yourself on the side-effects and what type of life will those drugs afford you?

Pharmacists, and physicians who don’t suffer like you, have no clue to what YOUR quality is. Because to them, it is far more important, that you live longer than to have any life of quality.  They base it on statistics and clinical trials, and try to force the statistics on you and tell you “don’t worry, most of the side effects are not bad and disappear over time”.  Then a few years later the FDA pulls the “dangerous” medication, and lawsuits by the thousands appear.  So why hassle with even putting yourself through that?   What quality is there in being so sick from pharmaceuticals, that you become a person just existing, and not living?

I may not always have the energy to do the things I would love to do, but I try my best not to ruin the time I do spend with family by letting my pain and suffering being the focus of any topics. I use the grin-and-bear-it method and just “live” when I can and drag my sorry ass into bed for naps that can last a few days to recover in silence.  To me, despite the pain and long recovery, I am blessed to be able to cherish what times I can.  I would rather take less medication and be able to function in a semi normal mental state, than extend my life being so doped up there is no quality to it.

Now how to convince people, although I may have to adapt how I attempt some of the adventures I want to undertake? I still want to be included within reason, but once diagnosed it seems like everyone is afraid to be around me, when my MS rears its ugly head and kicks me.  As if I have the plague, friends all flee.  I no longer get invites to do things.  I am no longer fun to be around.

Good thing I have the few chosen close friends in my life, who don’t care how I feel or look.  They will drag my sorry ass in pajamas, rolling in a wheelchair, or hauling me like a sack of potatoes over their shoulder, just to make sure I am included in whatever activity or adventure they want me to be a part of.  To those few, I am forever thankful.  Because one day, there will be a time when I cannot be flung over a shoulder or rolled around and that memory will bring a smile to my face as I recall it.

If you’re someone that has been gifted a life sentence, diagnosed with a disease for which there is no cure, try to make the best of it.  Choose options that are comfortable for you.  Talk with people who have been there, are headed there, or took that journey willingly with someone they love.  Make informed decisions on how you want to define your quality of life verses how long you plan to exist.

Life is about LIVING, not waiting to DIE.

 

©Copyright protected 2015: NWU Local 1981

©IAPP Author/Journalist   Press ID # 1007490467